Category: Teddy’s Story

We drove away from the hospital full of excitement and fear. Being a first-time parent is scary enough, but being a first-time parent of a child who is reliant on the machines they are attached to is terrifying. We felt confident we could do it, but honestly, we weren’t sure exactly how. But as with …

There we were, back in the same room we had just left, scared and defeated. Seeing Teddy connected to oxygen and monitors again was heartbreaking and I just kept thinking over and over “what did I do wrong?” We failed. We couldn’t keep our baby safe at home. Were these logical thoughts, no, but at …

We were home again, and it felt amazing. This time my mom had to go back home, so we were completely on our own, but we were so grateful to be home. Don’t get me wrong, it was terrifying and incredibly stressful, but there is just something about being home with your baby, without all …

Our NICU room had been so inviting and cozy. The walls were a warm color and there was artwork and furniture to make you feel comfortable. We had developed these wonderful relationships and they all let us do everything we felt comfortable doing, without hovering over us. While we never left him during the day, …

It was transfer day!  We were extremely nervous, but so excited to get to Boston and finally have a plan of action in place to get Teddy’s EA repaired. Teddy was still requiring oxygen, but overall was doing great. He was still growing slowly, and his little personality was blossoming every day. While we were …

Our first month we were in Boston was by far the calmest and most relaxing we had experienced since Teddy’s birth. While it was very busy, we quickly fell into a routine and could just focus on Teddy growing. We were very nervous because we knew the big surgery would be upon us soon, we …

We woke up on the day of surgery with excitement and fear.  We were so excited to finally be at Teddy’s repair surgery but were also worried about how Teddy would handle the massive surgery and also about what the following weeks would bring.  Teddy also seemed to be excited about the future.  He was …

Reflecting back on the few weeks after Teddy’s first surgery makes me wish we had tried harder to not be so stressed during that time, so we could have conserved our energy for what was to come. Looking back now, those first few weeks were relatively calm. Teddy was stable and his body was doing …

It was reconnection day!  A day we had dreamed about and turned our lives upside down to make sure happened. We were so excited and could finally see a finish line off in the distance, but also knew the next few weeks of recovery would be one of the hardest parts. Honestly it seemed like …