This is the story of a boy who against all odds THRIVED!
Welcome to Narrating Teddy’s Remarkable Life! If you are new to Teddy’s story, you can start at the beginning by clicking on Teddy’s Story in the menu bar. You can also see fun updates, read about his diagnoses, and our experiences in special needs parenting by clicking on those categories. New posts will show just …
I finally managed to start writing the next part of Teddy’s story. I will do my best to try and explain everything, but it was all so complex and overwhelming at the time and it has been 7 years since then, so please bear with me. Thank you!
You often hear people say that seeing the world through a child’s eyes makes the world a more beautiful place and it couldn’t be more true. There is something about their exclamations of wonder and excitement that immediately make you realize just how amazing this world can be. There are no expectations of what the …
View this post on Instagram A post shared by Narrating Teddy's Remarkable Life (@narratingteddysremarkablelife)
The week following Teddy’s surgery was pretty straight forward. We settled back into a routine and started decorating Teddy’s bed area for his first Christmas! It was going to be his first Christmas and while we hoped we would be back on the main floor in a room before Christmas day, we wanted to make …
It was reconnection day! A day we had dreamed about and turned our lives upside down to make sure happened. We were so excited and could finally see a finish line off in the distance, but also knew the next few weeks of recovery would be one of the hardest parts. Honestly it seemed like …
Reflecting back on the few weeks after Teddy’s first surgery makes me wish we had tried harder to not be so stressed during that time, so we could have conserved our energy for what was to come. Looking back now, those first few weeks were relatively calm. Teddy was stable and his body was doing …
We woke up on the day of surgery with excitement and fear. We were so excited to finally be at Teddy’s repair surgery but were also worried about how Teddy would handle the massive surgery and also about what the following weeks would bring. Teddy also seemed to be excited about the future. He was …
Our first month we were in Boston was by far the calmest and most relaxing we had experienced since Teddy’s birth. While it was very busy, we quickly fell into a routine and could just focus on Teddy growing. We were very nervous because we knew the big surgery would be upon us soon, we …
It was transfer day! We were extremely nervous, but so excited to get to Boston and finally have a plan of action in place to get Teddy’s EA repaired. Teddy was still requiring oxygen, but overall was doing great. He was still growing slowly, and his little personality was blossoming every day. While we were …
Our NICU room had been so inviting and cozy. The walls were a warm color and there was artwork and furniture to make you feel comfortable. We had developed these wonderful relationships and they all let us do everything we felt comfortable doing, without hovering over us. While we never left him during the day, …