Narrating Teddy's Remarkable Life
This is the story of a boy who against all odds THRIVED!
Of Teddy’s plethora of diagnoses, there are two that caused the most fear and uncertainty for me at the time they were given: Caudal Regression Syndrome and Hydrocephalus. Shortly after Teddy turned a month old, he was wheeled out of his room for his first official MRI. It was clear just by looking at him …
In this post series, I will explain each of Teddy’s diagnoses in detail, with more medical terms and imaging if I am able to find them. These will be more technical posts, but for those interested, we hope it will educate more people on these rare conditions, so as the rate increases each year, there …
Welcome to Narrating Teddy’s Remarkable Life! If you are new to Teddy’s story, you can start at the beginning by clicking on Teddy’s Story in the menu bar. You can also see fun updates, read about his diagnoses, and our experiences in special needs parenting by clicking on those categories. New posts will show just …
Teddy is completely nonverbal. While he does make sounds, they are not related to any letter, word, or speech. They are just reflective of his mood, so excitement or anger, etc. He has a communication device that he is able to select words and it will talk for him, but he hasn’t quite figured it …
Teddy was stable and it was amazing. The next few weeks were focused on keeping him stable and continuing to find all the underlying medical anomalies and confirm diagnoses. What this meant for us was that just like every new parent with a newborn, we were able to start developing a routine, just one that …
I remember after finding out we were pregnant sitting in the doctor’s office and the doctor giving us his due date. I immediately started laughing, because the date she gave was October 3rd and I thought to myself that hopefully our gummy bear would be a day late! In my family, October 4th is a …
Teddy survived not only his first major surgery at 16 hours old, but also his first night. At that moment we felt like we won the lottery. For a week we had been told to prepare for a funeral, but there he was fighting and proving them all wrong. As soon as we would celebrate …
At 3:37am on August 10th, 2016, Teddy decided he couldn’t wait a minute longer and made his grand entrance. In that moment the world seemed to stop. Everyone seemed to hold their breath. I remember asking if he was okay. I don’t remember a verbal response, but she gave me a little smile and placed …
There are very few people that know this part of the story, the week leading up to Teddy’s birth. Like my last post, we haven’t talked about this part because it was too hard and we had the miracle of Teddy to focus on. But I truly believe that the week before his birth was …
For as long as I can remember, I knew I would struggle to have kids. I have no idea why, as nothing in my life would have suggested this, but there was this underlying intuition that I would not be able to conceive or if I did my child may have medical issues. I knew …