After Christmas, things started to seem like they were getting better. Teddy was doing better and better each day. The fluid coming out of his chest tube was getting less and less and his breathing was getting stronger and stronger. They had finally been able to wean him off of the high doses of morphine …
Chapter 21: Teddy’s First Christmas
When you are pregnant, you begin to imagine all the 1st your child will have. Their first smile, first steps and their first Christmas. My mother had made Christmas and holidays so magical for us and I dreamed of doing the same for my children. What I never imagined was my child’s first Christmas involving …
Chapter 20: A Serious Complication
The chest tube did immediately seem to provide some relief for Teddy thankfully. As soon as some of the fluid was drained from his chest, his breathing difficulties started to ease and he seemed to be less agitated and in pain. The doctors still did not know why his chest was filling with fluid, but …
Chapter 19: We Thought We Were Prepared
I finally managed to start writing the next part of Teddy’s story. I will do my best to try and explain everything, but it was all so complex and overwhelming at the time and it has been 7 years since then, so please bear with me. Thank you!
Insights into Special Needs Parenting: Beautiful Rose Colored Glasses
You often hear people say that seeing the world through a child’s eyes makes the world a more beautiful place and it couldn’t be more true. There is something about their exclamations of wonder and excitement that immediately make you realize just how amazing this world can be. There are no expectations of what the …
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Chapter 18: Seeing those Beautiful Blue Gray Eyes Again
The week following Teddy’s surgery was pretty straight forward. We settled back into a routine and started decorating Teddy’s bed area for his first Christmas! It was going to be his first Christmas and while we hoped we would be back on the main floor in a room before Christmas day, we wanted to make …
Chapter 17: A Shiny New Esophagus
It was reconnection day! A day we had dreamed about and turned our lives upside down to make sure happened. We were so excited and could finally see a finish line off in the distance, but also knew the next few weeks of recovery would be one of the hardest parts. Honestly it seemed like …
Chapter 16: Esophagus Growing Magic
Reflecting back on the few weeks after Teddy’s first surgery makes me wish we had tried harder to not be so stressed during that time, so we could have conserved our energy for what was to come. Looking back now, those first few weeks were relatively calm. Teddy was stable and his body was doing …
Chapter 15: The Longest 16 Hours of Our Lives
We woke up on the day of surgery with excitement and fear. We were so excited to finally be at Teddy’s repair surgery but were also worried about how Teddy would handle the massive surgery and also about what the following weeks would bring. Teddy also seemed to be excited about the future. He was …